The good news is what I expected-that my PNETS remain stable! They did not do the EUS at NIH but If I were to just read the reports from the scans at NIH they say they only really see a very small focal point in the pancreas. So very promising and I wonder how the next Endoscopic UltraSound will go - will it be like the last, where they only counted 4 tumours instead of the 6 they saw previously? I was told not to get very excited but it IS VERY EXCITING to learn that they saw less tumors than previously on my last test! Sometimes we need to hold onto that hope just to keep on trucking!
There was some bad news that I've been mulling over the last little bit as the MRI picked up a focal point in my liver that wasn't there 3 years ago. They're using the word metastasis. So that's definitely something I wasn't expecting - I suppose because the PNETS have been pretty much stable over the last 12 years...
The principal investigator told me not to panic, this is very slow growing and so super small that we will only monitor the situation for now. She said NOT to have my pancreas removed, which is the complete opposite advice I've received from my local specialist. So I'm at a crossroads at the moment. Lucky for me that I have some time to decide what I want to do with this new information.
If nothing else, this new info has given me a deeper sense of drive and purpose and stronger desire to push forward with everything I've been doing!
Update on this as of fall of 2023, the MRI's of my liver continue to be clear, according to my specialist who is reading the reports to me. He thinks the focal point was a birthmark that was previously found on my liver during my surgery. So praise God!
I might be writing less often because of the beautiful weather now, but guaranteed I spend time every day reading and searching for the answers to my burning questions!
I'm currently researching the impact of eating meat (is one type better than others?), insulin receptors on cancer cells and why some people say that it's a myth that sugar feeds cancer cells, the benefits of Lanreotide, liver health & gut bacteria (always & ongoing with these), a closer look at Low Dose Naltrexone (LDN) and its affect on cancer cells, and the effects of cortisol on the body.
I've also revisited the Chris Beat Cancer website and just watched the documentary on Netflix called "The C word", the remarkable life and theory of David Servan-Schreiber who wrote the book called Anti Cancer. I loved his message as it aligns perfectly with what I'm all about. Both David and Chris Wark and so many others have made lifestyle changes with huge benefits and try to tell others that there ARE THINGS YOU CAN DO to help heal yourself!
If you haven't seriously changed your diet (at minimum) then please watch that film. Learn that there is a 1 in 2 chance that you will develop cancer in your life and that 70% of cancers can be prevented!! That each one of us has cancer cells in our body RIGHT NOW and why some will develop cancer and some won't! Watch it even if you don't have cancer, because you can prevent so much with some lifestyle changes!
A cancer diagnosis is something none of us want to face, yet more and more people are living with cancer. More and more people realize that cancer is a wake up call and they're learning how to really LIVE their best life because of this! It is my wish that people wouldn't need something as significant as cancer or illness to learn this.
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